Our Family’s Update – 4 years

Four years – wow! We are celebrating M’s fourth birthday and it’s time for an update. The last time I posted, M was just two weeks into school and was already loving it. Ben, A, N, & I were all at home doing school and work virtually, but isolated from our quarantine bubble again due…

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Our Family’s Update – 3.5 years

first day special education preschool

What an eventful six months this has been for our family and our world! COVID-19 has changed the landscape of everything, and continues to inject a layer of uncertainty over all of our plans. What a time to be alive. The last time I updated, we were juggling quite a bit with all of M’s…

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Our Family’s Update — 3 years

Three year old party

Believe it or not, it is already time for another family update! At the time of the last update, we were about 12 months into a significant therapy increase and seeing some great progress. Little did I know at the time of posting that the entire world was about to change, and our little micro-world…

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Our Family’s Update — 2.5 years

uphill climb

As we continue the long, uphill climb of finding our way through the special needs journey, I wanted to document an update on our family and how M’s therapies are going at the 2.5-year mark. As you may recall, in the last installment of our story, M was 1.5 and we had received our genetic…

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Our Family’s Story – Part 4 – 18-24 Months

genetic disorder diagnosis

This post is part 4 in a series of posts describing our family’s story. In part 1, I shared the beginning of our pediatric medical adventures with our son’s lesion on his chest, multiple rounds of testing, and eventual diagnosis of Langerhans cell histiocytosis. Part 2 describes M’s birth and first few months of life,…

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Our Family’s Story – Part 3 – 6-18 Months

special needs whirlwind

In a series of posts, I’ve been sharing our family’s story from the past few years. The story began in 2016 with a medical adventure with our son and the toll it took on our family as we were preparing to welcome baby #3. In part 2, I explored M’s birth and early months, when…

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Our Family’s Story – Part 2 – 0-6 Months

special needs infancy

This is Part 2 of a series sharing our family’s special needs journey so far. In Part 1, I described the events leading up to M’s birth – our son’s medical scare and eventual diagnosis of Langerhans cell histiocytosis, the toll that took on the family, and the crisis point we were already in before…

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Our Family’s Story – Part 1 – Pregnancy and Birth

our special needs story

When wave after wave of trauma takes over your life, it can take time to put into words what has happened and why it was so difficult. I am fully aware that our story is not as difficult as the stories of some others, but our experience has been nonetheless painful. It takes a lot…

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