Our Story

Yes, it has been much longer this time since my last post! M is 6.5 now and it won’t be long before she turns 7. Even though it’s not a nice round birthday, I wanted to go ahead and write an update while I had the brain space. Thank you for your patience. 🙂 I…

Five years – I can hardly believe it! It feels like the past 12 months have gone both lightning fast and glacially slow all at the same time. At the time of my last post, we were looking forward to all being back to in-person school and even had a couple of trips planned. We…

Four years – wow! We are celebrating M’s fourth birthday and it’s time for an update. The last time I posted, M was just two weeks into school and was already loving it. Ben, A, N, & I were all at home doing school and work virtually, but isolated from our quarantine bubble again due…

What an eventful six months this has been for our family and our world! COVID-19 has changed the landscape of everything, and continues to inject a layer of uncertainty over all of our plans. What a time to be alive. The last time I updated, we were juggling quite a bit with all of M’s…

Believe it or not, it is already time for another family update! At the time of the last update, we were about 12 months into a significant therapy increase and seeing some great progress. Little did I know at the time of posting that the entire world was about to change, and our little micro-world…

As we continue the long, uphill climb of finding our way through the special needs journey, I wanted to document an update on our family and how M’s therapies are going at the 2.5-year mark. As you may recall, in the last installment of our story, M was 1.5 and we had received our genetic…

This post is part 4 in a series of posts describing our family’s story. In part 1, I shared the beginning of our pediatric medical adventures with our son’s lesion on his chest, multiple rounds of testing, and eventual diagnosis of Langerhans cell histiocytosis. Part 2 describes M’s birth and first few months of life,…

In a series of posts, I’ve been sharing our family’s story from the past few years. The story began in 2016 with a medical adventure with our son and the toll it took on our family as we were preparing to welcome baby #3. In part 2, I explored M’s birth and early months, when…

This is Part 2 of a series sharing our family’s special needs journey so far. In Part 1, I described the events leading up to M’s birth – our son’s medical scare and eventual diagnosis of Langerhans cell histiocytosis, the toll that took on the family, and the crisis point we were already in before…

When wave after wave of trauma takes over your life, it can take time to put into words what has happened and why it was so difficult. I am fully aware that our story is not as difficult as the stories of some others, but our experience has been nonetheless painful. It takes a lot…