A Special Needs Journey

Our Family’s Story – Part 2 – 0-6 Months

June 8, 2019
Posted in
special needs infancy

This is Part 2 of a series sharing our family’s special needs journey so far. In Part 1, I described the events leading up to M’s birth – our son’s medical scare and eventual diagnosis of Langerhans cell histiocytosis, the toll that took on the family, and the crisis point…

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Our Family’s Story – Part 1 – Pregnancy and Birth

May 31, 2019
Posted in
our special needs story

When wave after wave of trauma takes over your life, it can take time to put into words what has happened and why it was so difficult. I am fully aware that our story is not as difficult as the stories of some others, but our experience has been nonetheless…

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Self-Care Is Not Optional

March 6, 2019
Posted in
exhausted special needs parent

The entire landscape of the special needs journey makes self-care a challenge. Medical appointments, traumatic events, mountains of paperwork, and the high level of daily need for your child means that your time is more limited than the average American. If you are juggling a full-time job, other children, or…

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Grief Needs Space

February 9, 2019
Posted in
Special needs grieving

Grief is a very real part of the special needs journey, most intensely in the months following a diagnosis or other traumatic event. I’m just under four months post-diagnosis, and I’m in the thick of the grieving process. I’ve been thinking a lot lately about how to survive special needs…

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Welcome!

Whether you are a caregiver, friend, or parent to someone with special needs, I hope you find supportive resources from my journey. Feel free to read a few blog posts, learn more about me, or subscribe to receive future posts below.

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